About US

About us

Our Journey

Dr. Goker-Alpan is a world-renowned authority in lysosomal and other rare genetic disorders. She is well known for her over 20 years of dedication to the health and well-being of her patients.

Our VIsion & Mission

We are committed to being at the forefront of medical advancement. Our goal is to uncover the root causes of diseases by utilizing the most recent technologies, research findings, and emerging biomarkers. We aim to translate these approaches into pioneering treatment avenues. With a special focus on Lysosomal and other Rare diseases, we endeavor to open doors to new hope and possibilities for those impacted by these conditions.

At our core, we are committed to delivering exceptional and individualized healthcare for individuals with Lysosomal and other rare and previously undiagnosed conditions. We believe every patient deserves focused and compassionate care tailored to their unique health challenges.

As a center of excellence, we offer comprehensive medical care and consultation, extending our services nationally and internationally. We are more than a healthcare provider; we are a community and support network for individuals and families facing the challenges of lysosomal diseases (LDs) and similar conditions. Our clinic is not just about treatment – it's about transforming lives.

The Comprehensive Care Center for Lysosomal Disorders

We are a "medical home" and a hub of comprehensive medical care for individuals with Lysosomal Disorders (LD), serving patients nationally and internationally. We cater to patients of all ages, offering a range of specialized services:

Diagnostic Testing: We utilize state-of-the-art diagnostic technologies to identify lysosomal disorders (LDs) precisely. Additionally, we provide counseling and support for testing family members who may be at risk. 

Treatment Coordination: Our team specializes in prescribing, monitoring, and managing Enzyme Replacement Therapy (ERT) and other approved treatments, with a focus on customizing care to meet the unique needs of each patient

Research and Registry Opportunities: We offer our patients the chance to participate in innovative research studies and contribute to disease registries. This involvement not only supports groundbreaking medical advancements but also provides access to the latest developments in healthcare.

Multidisciplinary Care: Our approach is collaborative, involving a team of specialists to provide comprehensive care for our patients. We offer a range of on-site assessments, including pulmonary function testing, echocardiography, physical therapy, and neurocognitive evaluations, ensuring convenience and holistic treatment.

Continuity of Care and Long-term Follow-up: We are committed to providing consistent, ongoing care and monitoring for our patients across various states and regions in the U.S., ensuring long-term health management and support

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Patient and Family Support: We offer extensive education and support programs designed to assist both patients and their families, ensuring they receive comprehensive guidance and care

In-Office Treatments: Our facility administers a variety of enzyme replacement and other adjunct therapies on-site. We have expertise in treating patients experiencing immune reactions or developed antibodies against enzyme replacement therapy (ERT) or other biologics.

Our clinic is more than a treatment center; it's a community dedicated to improving the lives of those with Lysosomal Disorders. We are committed to providing the highest standard of care, education, and support for our patients and their families.

PROVIDERS

Ozlem Goker-Alpan, MD
Ozlem Goker-Alpan, MD
Dr. Goker-Alpan received her medical degree in 1990 from Marmara University School of Medicine in Istanbul, Turkey with the highest honors as first in her class. She trained in Pediatrics and then served as a Pediatric Chief Resident at SUNY at Stony Brook, New York. She completed her first fellowship in Clinical and Biochemical Genetics at the National Institutes of Health, Greater Washington Medical Genetics Program in 1999, and worked as an adjunct scientist at the National Child Health Institute. Her second fellowship focused on Lysosomal Disorders and Gaucher disease at the Clinical Neuroscience Branch, National Institute of Mental Health (NIMH), NIH. She coordinated the NIH Gaucher Clinic at the Medical Genetics Branch of the National Human Genome Research Institute (NHGRI). As an established clinician and translational scientist in rare genetic and lysosomal storage disorders, her pursuit is to provide individualized care and treatment for patients with LSDs and rare diseases. Her continuing effort is to educate and train the new generation health care providers in Lysosomal Disorders.
LIA VAN
NPLIA VAN
Lia Van is a Family Nurse Practitioner at LDRTC. She graduated from Oakland University in Auburn Hills, Michigan, where she received a Bachelor of Science in Nursing. While working as a Registered Nurse, she completed her Master of Science in Nursing specializing in Family Medicine at Walden University in August 2019 and finished it with a 2 - year Fellowship in Lysosomal Storage Disorders with Dr. Ozlem Goker-Alpan at LDRTC. Being a Family Nurse Practitioner enables her to work with patients in all age groups. She is also responsible for the supervision of the infusion clinic, where patients are regularly treated with enzyme therapy and other biologics. With over ten years of experience as a bedside nurse in an acute care setting have shaped her professionally and interpersonally. She has a passion for providing compassionate, highest-quality, and individualized care to all her patients.

Clinical Staff

Bobby Sandhu
LPNBobby Sandhu
Hudda Ali
CMAHudda Ali
Yoleny Argueta
LPNYoleny Argueta
Rosmery Cambices
Pharmacy TechnicianRosmery Cambices
William Hyltons
CMAWilliam Hyltons

Administration

Uyensa Beese
Practice ManagerUyensa Beese
SAPPHIRE TRUONG
Patient Care CoordinatorSAPPHIRE TRUONG

Connect with us

3702 Pender Drive, Suite 170,
Fairfax VA 22030

  • Phone 1 703-261-6220

  • Fax 1 703 991-6592

  • info@LDRTC.org

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