LYSOSOMAL DISORDERS
lysosomal disorders and current treatments
Dr. Goker Speaks at WorldSymposium
Monitoring and management of inflammation in Gaucher disease: Challenges, options and useful tools.(Accredited provider: Postgraduate Institute for Medicine (PIM); Jointly provided by PIM and Saterdalen & Associates, LLC; Supported by an independent educational grant from Takeda).
| March 17, 2020 |
Dear patients and family members,
With the emergence of COVID-19 pandemic, our patients and their families are understandably unsettled about its implications for their health and well-being.
We suggest that the patients under our care follow the CDC recommendations given to the highest risk populations such as the elderly and those with other co-morbid conditions, which pose a greater risk of complications. Please check the CDC website for current updates.
| March 25, 2020 |
In the face of the challenges posed by the current COVID-19 pandemic, LDRTC is continuing to serve the Rare Disease community by maintaining the medical services offered to our patients with Lysosomal Disorders, Immune deficiencies, and other rare diseases.
We remain fully operational to administer infusions and injectable therapies at our Infusion Clinic. Clinical Trial protocols for many life-saving therapies are similarly moving forward without any interruption.
| July 29, 2021 | Top 10% most cited paper published
|December 23, 2020 | Fabry disease Study
LDRTC treated the first patient for the expanded access study for Fabry disease
| August 6, 2021 | Pompe disease Study
LDRTC participates in studies that contributed to a new treatment option for late-onset Pompe disease
| January 22, 2021 | Gaucher disease Study
The main aim of this study is to learn if velaglucerase alfa (VPRIV) improves growth and symptoms in participants with Gaucher disease that are under 5 years old. Symptoms will be checked with blood tests.
Another aim of the study is to check if there are any side effects from VPRIV.
The study will take place in the United States.
| January 22, 2021 | LDRTC approved by ACGME
| October 25, 2022 | Gaucher Patient & Family Conference
| July 28-30, 2022 | NNPDF Conference
| April 10, 2022 | FSIG Fabry Conference
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