COVID-19 Update

April 06, 2020
Dear Patients and Family Members,

With the emergence of COVID-19 pandemic, our patients and their families are understandably unsettled about its implications for their health and well-being.

We suggest that the patients under our care follow the CDC recommendations given to the highest risk populations such as the elderly and those with other co-morbid conditions, which pose a greater risk of complications. Please check the CDC website for current updates.

cdc.gov/coronavirus/2019-ncov/about/index.html

cdc.gov/coronavirus/2019-ncov/specific-groups/high-risk-complications.html

While it is suggested that COVID-19 may remain asymptomatic in pediatric population, we interpret this observation with extreme caution for the pediatric patients followed at our center, as the disorders we treat affect the immune system (either primary or secondary), and in addition, many of these disorders have lung involvement as well.

We recommend social distancing, but we also would like to emphasize the importance of continuation of your therapy uninterrupted. Please contact the center where you receive your infusion treatments and inquire whether certain policies that may limit personal contact and duration of the time spent (such as private rooms, and availability of checking in and preparation of the medication in advance) are in place. Please note that we DO NOT recommend interrupting or skipping any treatments especially for patients who have an active “Gaucher disease”. If you are skipping treatments for reasons that are not predictable, such as unavailable home nursing services, or delays in drug shipments, kindly contact us so that we can advise a plan to monitor your disease.

The oral medication (Cerdelga®) may interact with many medications, especially with Hydroxychloroquine used as the first line treatment in COVID-19 infections. Cerdelga, Hydoxychloroquine and Azithromycine combination should not be taken together for their potential interactions that may affect the heart rhythm and EKG. Please contact us immediately if you are unsure about your medications.

For the patients who receive their treatments at our center, we will implement a triage system prior to the appointment by confirming that you do not have any symptoms such as chills, sore throat and cough or a history of known exposure to COVID-19. At the day of the appointment in addition, we will check your temperature before you enter the premises at the check-in station. If you have a fever, even low grade (for adults 99 degrees F, and for children 100 F and above), we will not be able to administer your treatment, and will refer you to your health care provider for further diagnosis and management.

If you are uncertain of your disease status, please contact us so that we can offer you guidance. Let us know whether we could be of further help by utilization of remote health and Telemedicine services. You may contact us via email at This email address is being protected from spambots. You need JavaScript enabled to view it. or by phone at +1 703-261-6220.

Respectfully,

Ozlem Goker-Alpan, M.D.

Lysosomal & Rare Disorders Research & Treatment Center (LDRTC) Fairfax, VA

Patient-Centered Care

Ozlem Goker-Alpan MD, LLC
Treatment Info

Treatment Info

LTC offers leading treatments at any of our three clinics in Virginia or Maryland...
More Info
Referring Doctors

Referring Doctors

Referral of patients is easy through our online form... 
Learn More
LYSOSOMAL DISORDERS

LYSOSOMAL DISORDERS

Learn about the signs and implications of lysosomal disorders and current treatments.
More Info
ltcteamshot.png

Welcome to
Lysosomal
Treatment Center

Our commitment is to provide high quality care for individuals with lysosomal storage diseases and other rare disorders by utilizing a variety of tested treatments and protocols, conduct local programs to increase awareness and to offer compassionate care and platform for the patients affected by these debilitating disorders.
cta-logo

Request an Appointment, Call 703-261-6220

Schedule Your Appointment Today

Connect with us

11212 Waples Mill Road, Suite 103,
Fairfax VA 22030

  • dummy+1 703-261-6220

  • dummy+1 703 991-6592

  • dummy info@LDRTC.org

Search